Category Archives: Living with LAM

Information and stories about living with LAM (lymphangioleiomyomatosis) based on Sarah’s personal experience with this rare, chronic lung disease.

How LAM impacts daily life

People who don’t have lymphangioleiomyomatosis (LAM) probably don’t understand what it’s like living with a [...]

Positive perspectives for women with LAM

Having lymphangioleiomyomatosis (LAM) is awful. Not only is the physical decline challenging, the psychological effects [...]

Advice for newly diagnosed women with LAM

I know first hand how scary it is to get a diagnosis of lymphangioleiomyomatosis (LAM). [...]


Being your own advocate

Being your own advocate and trusting your instincts is so important when you have a [...]

LAM community support

Being an active member of the lymphangioleiomyomatosis (LAM) community has really helped me cope with [...]


Symptoms of LAM

According to the LAM Foundation, the symptoms of lymphangioleiomyomatosis (LAM) can include: Shortness of breath [...]

Healthy living with LAM

Lymphangioleiomyomatosis (LAM) is a degenerative lung disease. As the disease progresses, one’s lung function decreases. [...]

Tips for traveling with LAM

Travel Breathe Repeat is a travel blog. One of the people traveling just happens to have [...]


LAM meet-ups in Australia

While in Australia, I was lucky to meet women with LAM and other members of the [...]


LAM meet-up in Auckland

Last year when I started talking to the LAM Foundation about this trip and mentioned [...]