Category Archives: Living with LAM

Information and stories about living with LAM (lymphangioleiomyomatosis) based on Sarah’s personal experience with this rare, chronic lung disease.

Steph, a woman, standing in front of a blue background with NIH logos; WWLAM 2020 logo in upper left corner
Thriving with LAM: Steph

Steph is sharing her story of hope and resilience as part of our “Thriving with [...]

31
May
Shea, a woman, standing in front of beautiful mountains; WWLAM logo in top right corner
Thriving with LAM: Shea

Shea is sharing her story of hope and resilience as part of our “Thriving with [...]

31
May
Najah and her three daughters smiling; WWLAM 2020 logo iin upper right corner
Thriving with LAM: Najah

Najah is sharing her story of hope and resilience as part of our “Thriving with [...]

7 Comments

31
May
Dina Marie, a woman walking towards the ocean rolling an oxygen tank behind her; WWLAM 2020 logo in upper left corner
Thriving with LAM: Dina

Dina is sharing her story of hope and resilience as part of our “Thriving with [...]

1 Comment

31
May
Three pictures of Meg, a woman with LAM, and her family; WWLAM logo in top right corner
Thriving with LAM: Meg

Meg is sharing her story of hope and resilience as part of our “Thriving with [...]

31
May
Maria, a woman, with two beautiful grandchildren, all wearing red noses; WWLAM 2020 logo in top right corner
Thriving with LAM: Maria

Maria is sharing her story of hope and resilience as part of our “Thriving with [...]

31
May
A woman, Sally, wearing an oxygen hose, next to her doctor, both smiling; WWLAM logo in right corner
Thriving with LAM: Sally

Sally is sharing her story of hope and resilience as part of our “Thriving with [...]

31
May
Woman smiling looking out at the Amalfi Coast in Italy
Taking control of life and LAM: Stephanie’s story living with a rare disease

The LAM community is small, with only a few thousand cases known worldwide. So it’s [...]

2 Comments

24
Feb
Sarah from the back looking out on the Yorkshire Dales
How travel has helped me cope with chronic illness

I was diagnosed with lymphangioleiomyomatosis (LAM) almost nine years ago. In that time, Justin and [...]

5 Comments

03
Jun
A zebra standing in the bush in Botswana, Africa
Showing my stripes for Rare Disease Day

Medical students are taught to think of horses instead of zebras when they hear hoofbeats. [...]

1 Comment

28
Feb