Advice for newly diagnosed women with LAM

Worldwide LAM Awareness Month

I know first hand how scary it is to get a diagnosis of lymphangioleiomyomatosis (LAM). It took me a long time to come to grips with it and get back to some semblance of normalcy in my life. But coping does get easier. And the women who contributed to this project have some really great advice.

Maria says…

Maria

Allow yourself to be scared, and angry, and to grieve (because we are only human and that is our first reaction) but then, arm yourself with the strength and courage of a warrior. If you can’t find it within yourself, our LAM sisters have enough to borrow!

 

 

Dina says…

Dina

Don’t be afraid. Stay as positive as you can. It’s so important to keep your mind strong along with your body. But its okay to have bad days. Just know you are not alone.

 

 

 

Meg says…

Meg

Be your own advocate. Don’t be afraid to ask for what you need – from professionals and from friends and family.

 

 

 

 

Sina says…

Sina

Life is not over. What are the things you really love? Just do them! Do them now!

 

 

 

 

 

Kristy says…

Kristy

It’s not necessarily a death sentence, as we often read on the internet. There’s new breakthroughs everyday, and medications being researched.

 

 

 

 

Kelly says…

Kelly

Pray. Seek information. Volunteer for studies.

 

 

 

 

 

Bree says…

Bree

Everyone is different, it affects us all in a different way. Keep in touch with your doctors for new treatment options.

 

 

 

 

Bre says…

Bre

In most cases, it is a slow decline, and we have already found a treatment.

 

 

 

 

 

Ine says…

Ine

It’s very annoying that you got the diagnosis but it’s possible to build a good and meaningful life. Probably in a different way than you had in mind. This process does a lot and it is important to get help.

 

 

 

Support women with LAM and help find a cure

Organizations that help women with LAM need your support! Click the below links to donate or learn more about the organizations that have helped the women who participated in this project.

WWLAM fundraising page for the The LAM Foundation (US)

LAM Selbsthilfe Deutschland e.V. (Germany)

Stichting LAM-Nederland (the Netherlands)

LAM Australia Research Alliance (Australia)

For information about all the global organizations that are a part of the Worldwide LAM Patient Coalition, click here.

Worldwide LAM Awareness Month (WWLAM)

Let us know what you think!