Thriving with LAM: stories of hope and resilience

WWLAM 2020 logo reads: HOPE our global connection worldwide LAM awareness month June 2020

Last Updated on 11th June 2020 by Sarah and Justin

June has always been a time to reflect on what having the rare lung disease, lymphangioleiomyomatosis (LAM) means to me. I was diagnosed with LAM in June 2010 and coincidentally, June is recognized as Worldwide LAM Awareness Month (WWLAM).

This year, the theme of WWLAM is hope. Given how the world has recently been upended, it’s a universal one.

As in previous years, I asked some of my LAM sisters from around the world to share their stories and how they’ve remained hopeful and positive in the face of a LAM diagnosis.

I’ve known some of these women for many years now. And even so, being reminded of what they’ve gone through and how they face the world with positivity and optimism has once again given me strength.

I am beyond grateful to these women for that and for sharing a part of themselves with me and with you. So a big thanks to them, and to you for reading and for helping spread LAM awareness… and a little hope too.

Stories of hope and resilience from women living with LAM

Steph, a woman with blonde hair and sunglasses on her head


“Lammies are bound together by strength of character, commitment to supporting one another, and relentless positivity.”

Read Steph's Story


“Take that LAM! I’m stronger than ever and can still do everything I love.”

Read Shea's Story
Shea, a woman, standing in her running gear
Najah, a woman wearing a "Dare to Rare" shirt and a big smile


“LAM is an emotional roller coaster at times, but it’s given me the opportunity to show my daughters what resilience looks like.”

Read Najah's Story


“It’s ok to mourn the life you had. But don’t let it ruin your new life. Don’t let LAM win.”

Read Dina's Story
Dina, a woman wearing an oxygen hose and glasses standing in front of the ocean
Meg, a woman with brown hair wearing glasses and an oxygen hose


“Take a breath, put one foot in front of the other and keep on keepin’ on.”

Read Meg's Story


“I still do me! I still am me! I still live my life to its fullest!”

Read Maria's Story
Maria, a woman with dark hair and bright red lipstick, smiling
Sally, a woman in a shirt that says "LAM" standing and smiling


“Don’t sweat the small stuff. Go live your life. Do what you want.”

Read Sally's Story
Globe with different icons and heart with "LAM" in the center; at the bottom reads: "connected by hope"

Donate to The LAM Foundation to fund research to find a cure and support services for women with lymphangioleiomyomatosis (LAM)

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