Last Updated on 11th June 2020 by Sarah and Justin
June has always been a time to reflect on what having the rare lung disease, lymphangioleiomyomatosis (LAM) means to me. I was diagnosed with LAM in June 2010 and coincidentally, June is recognized as Worldwide LAM Awareness Month (WWLAM).
This year, the theme of WWLAM is hope. Given how the world has recently been upended, it’s a universal one.
As in previous years, I asked some of my LAM sisters from around the world to share their stories and how they’ve remained hopeful and positive in the face of a LAM diagnosis.
I’ve known some of these women for many years now. And even so, being reminded of what they’ve gone through and how they face the world with positivity and optimism has once again given me strength.
I am beyond grateful to these women for that and for sharing a part of themselves with me and with you. So a big thanks to them, and to you for reading and for helping spread LAM awareness… and a little hope too.
Stories of hope and resilience from women living with LAM
“Lammies are bound together by strength of character, commitment to supporting one another, and relentless positivity.”Read Steph's Story
“LAM is an emotional roller coaster at times, but it’s given me the opportunity to show my daughters what resilience looks like.”Read Najah's Story
“It’s ok to mourn the life you had. But don’t let it ruin your new life. Don’t let LAM win.”Read Dina's Story