Tag Archives: LAM advice

11 things I wish I knew 11 years ago

I was diagnosed with LAM 11 years ago. It was a tough day and an [...]

7 Comments

How travel has helped me cope with chronic illness

I was diagnosed with lymphangioleiomyomatosis (LAM) almost nine years ago. In that time, Justin and [...]

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Showing my stripes for Rare Disease Day

Medical students are taught to think of horses instead of zebras when they hear hoofbeats. [...]

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Traveling with LAM

I mention it often here – I have a fatal, incurable lung disease called lymphangioleiomyomatosis [...]

11 Comments

Everything you need to know about flying with oxygen

Flying with oxygen or any medical device can be a hassle. Keeping track of all [...]

44 Comments

10 tips for traveling with a lung disease

Traveling isn’t only for “healthy” people. I have a rare, chronic illness and I’ve been [...]

11 Comments

All about my portable oxygen concentrator (and why I love it)

Because I have LAM, my lungs don’t work as well as a healthy person’s so [...]

8 Comments