How LAM impacts daily life

Worldwide LAM Awareness Month

People who don’t have lymphangioleiomyomatosis (LAM) probably don’t understand what it’s like living with a debilitating lung disease that limits everyday activities. Even the simplest tasks can take a lot out of us and we have to plan when and how we want to use our precious energy. Kelly says… I cannot have a life […]

Positive perspectives for women with LAM

Worldwide LAM Awareness Month

Having lymphangioleiomyomatosis (LAM) is awful. Not only is the physical decline challenging, the psychological effects are especially rough. But when you are diagnosed with an incurable disease, even though you’re allowed to be angry and feel bad, it can be helpful to find acceptance and see the positives. And there are positives! I know I never […]

Being your own advocate

Worldwide LAM Awareness Month

Being your own advocate and trusting your instincts is so important when you have a rare, chronic disease like lymphangioleiomyomatosis (LAM). It can get you the care you need and even save your life. Before I had a diagnosis, I kept going to see doctors and even changed doctors when I didn’t feel one was […]

LAM community support

Worldwide LAM Awareness Month

Being an active member of the lymphangioleiomyomatosis (LAM) community has really helped me cope with this diagnosis. I’ve worked closely with my doctor and her lab to help further their research. I’ve spoken at scientific and fundraising events about my experience. I served as a LAM Liaison for the LAM Foundation for several years, helping to […]

Symptoms of LAM

Worldwide LAM Awareness Month

According to the LAM Foundation, the symptoms of lymphangioleiomyomatosis (LAM) can include: Shortness of breath Chest pain Chronic cough Fatigue Lung collapse (pneumothorax) Benign kidney tumors (angiomyolipomas) Pleural effusion (chylothorax) Learn more about these symptoms Reading a list of symptoms is very different from knowing what they’re like to live with. Even though everyone is different, […]

Healthy living with LAM

Worldwide LAM Awareness Month

Lymphangioleiomyomatosis (LAM) is a degenerative lung disease. As the disease progresses, one’s lung function decreases. A major symptom of LAM is shortness of breath and many women with LAM require supplemental oxygen. These things make exercising pretty hard, but exercise is so important for us! My doctor strongly encourages me and all her patients to exercise […]

Traveling with LAM

Worldwide LAM Awareness Month

Travel Breathe Repeat is a travel blog. One of the people traveling just happens to have a rare lung disease called lymphangioleiomyomatosis (LAM). Having traveled exclusively for the past year, I’ve enjoyed sharing where we’ve been as well as tips for traveling with a lung disease. Many of the women who contributed to this project also […]

LAM meet-ups in Australia

Australia flag

While in Australia, I was lucky to meet women with LAM and other members of the Australian LAM community. LAM Australia Research Alliance The LAM Australia Research Alliance is a national organization currently based in Sydney. Their goals are to fund research, support women with LAM throughout the country, and improve healthcare professionals’ knowledge and treatment […]