Category Archives: LAM info

Information about what it’s like living with the rare, chronic lung disease, lymphangioleiomyomatosis (LAM).

2018 Worldwide LAM Awareness Month

Worldwide LAM Awareness Month 2018

June is Worldwide LAM Awareness Month (WWLAM). Lymphangioleiomyomatosis (LAM) is a rare, incurable lung disease. Sarah was diagnosed with LAM in 2010. Since then, we’ve connected with many other women with LAM around the world. In honor of WWLAM 2018, we’re excited to share some of their stories and give you a glimpse into what […]

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Traveling with LAM

Living with LAM: Sarah

I mention it often here – I have a fatal, incurable lung disease called lymphangioleiomyomatosis (LAM). Traveling has helped me and Justin cope with having this disease and the uncertainty it brings. While we try to build tips about traveling with a chronic illness and accessibility information about destinations into our posts, I haven’t actually […]

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Being an athlete with LAM

Living with LAM: Melissa

It took crossing the finish line of my first marathon for me to consider myself an athlete. Although I enjoyed athletic activities throughout my life – softball, volleyball, track and field, swimming, hiking, skiing – it wasn’t until I took up running as an adult that I identified as an athlete. I became increasingly interested […]

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Exercising with LAM

Living with LAM: Nisha

A couple years after my LAM diagnosis, I decided to take an outdoors fitness bootcamp class. I had lung surgery a year prior and was still nervous about upper body conditioning, not to mention struggling with shortness of breath. So I talked briefly about LAM with the instructor who assured me that she would be […]

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Being a godparent with LAM

Living with LAM: Catrin

My name is Catrin. I’m 45 years old, married, and live in Germany close to the Black Forest. Right after my 30th birthday I had my first pneumothorax (lung collapse), but was healthy ever since. Then my life started changing every five years. It took five years and several pneumothoraces to get a diagnosis. So when I turned 35 […]

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Being a working mom with LAM

Living with LAM: Jennifer

In 2008, I was in my final weeks of graduate school at the University of Michigan when my right lung collapsed for the second time in three years. Within an hour of being admitted to the hospital, they did a CT scan of my chest, and I first heard the word “lymphangioleiomyomatosis.”  When I was […]

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Worldwide LAM Awareness Month

Worldwide LAM Awareness Month

June is Worldwide LAM Awareness Month (WWLAM)! Ten women contributed their stories for us to share during WWLAM. Our goal is to raise awareness of LAM and offer advice and inspiration to other women living with LAM. You can read about: How LAM impacts daily life Positive perspectives for women with LAM Advice for women newly […]